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"Park Right Here" with Katrina Rochon and Tom Consentino...our personal journeys with Parkinson's Disease
Park Right Here is an informational and hopefully entertaining podcast about Parkinson's disease Tom and I both want this podcast to be more than just about PD. Our desire is to give hope, to inspire and educate PWPs (people with Parkinson's), friends, family, medical professionals, physical therapists, nurses, PCMs, pharmacists, support groups, personal trainers, home health aides, pastors/spiritual advisors, occupational therapists, neighbors, and anyone who wants to support those with PD. We want to let you know that you are not alone. We want to share our personal stories with you. They can at times be funny, sad, hopefully inspiring, difficult, and life-changing. This podcast will have episodes on various topics. An important one is your diagnosis. We will share experiences, trials, and lessons that we both have learned through our journeys. We will discuss the importance of being your own best advocate or one for those you love, basic information about medication, what is and how to choose your care team, what a movement disorder specialist is, how important exercise is for PD, the latest trials and clinical research, tips and tricks on getting through the day, nutrition, the good and bad about supplements and natural remedies, the importance of a support group, what to do when you don't have a support group nearby, how to find support on social media, the importance in talking about PD with others. We both want to make it clear that WE ARE NOT medical professionals or experts in medications, treatments, or even PD. We are lay people just like you and we will be sharing OUR experiences regarding OUR journeys with PD. We want you to take what helps you and discard the rest. We also want to EMPHASIZE that if you have any questions about any medication, speak to your doctor, neurologist, movement disorder specialist, or pharmacist. We want to be transparent and honest. We will not sugarcoat how difficult dealing with PD can be or hide our bad days. What you hear and see, is what you get. We want you to know that PD affects every aspect of your life and those around you, but it shouldn't stop you from living the best life you can. We will interview people who work with and are associated with PD. For example, a movement disorder specialist, physical and occupational therapists, the CEO of LSVT, PWR (Parkinson's Wellness Recovery) PD exercise group, medical professionals, those involved in clinical research, those that work for nonprofit organizations like Michael J Fox foundation and Davis Phinney Foundation, psychologists, family and caregivers, those with PD, and the many inventors and entrepreneurs who are working on treatments and items to help improve our quality of life. Possibly even Micheal J Fox himself. An important part of this podcast is that every listener can be involved. It is our podcast. We want the ideas and questions that you have about PD. We want to hear what topics you would like to discuss. It's important to understand if you violate guidelines, use bad language, bully/troll, or are disruptive, you will be reported and blocked. If you threaten or we believe you are a danger to yourself or others, We will report any comments and posts that we deem necessary for you to get the help that you need. We are so excited to share this with you and we hope it helps you understand what PD is and how to walk through this journey with hope and joy. Thanks for listening and supporting our dream.
"Park Right Here" with Katrina Rochon and Tom Consentino...our personal journeys with Parkinson's Disease
Meeting a new friend
Tom sits with a nice young lady I met at a Parkinson's symposium. They talk about her journey through the muck and the mire of our current Healthcare System and getting a proper diagnosis. Christina will explain how a neurologist thought it was psychosomatic and not Parkinson's even after being on Sinemet for years. What's your Parkinson's story? Please email us at parkrightherepodcast@gmail.com
